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Self Advocacy - Other Useful Links

 

Advocating Change Together, St. Paul, Minnesota, USA, is a disability rights organization run by and for people with intellectual and other disabilities. ACT is committed to the premise of, "It is not the individual who must change to fit society, but society and systems that must change to accommodate all people." More information is available at: http://www.selfadvocacy.com/aboutact.htm.

 

Association for Self Advocacy (ASA), Zagreb, Croatia, is the only NGO in Croatia that is run by and for people with intellectual disabilities. Established in 2003, ASA meets regularly to work on campaigns and to discuss relevant human rights issues. The organization is particularly concerned with assisting people with intellectual disabilities in the process of moving from institutions into the community. More information is available at: http://www.inkluzija.hr/Inkluzija_Home.htm or email samozastupanje@zg.t-com.hr. To view a film on community living for people with intellectual disabilities in Zagreb, please click here.

 

The Big Tree: An internet portal for learning disability, London, United Kingdom, is a project of The Rix Centre at the University of East London. The goal of the portal is to provide links to a variety of websites related to intellectual disability. A large amount of Easy to Read content is included on the portal, and many pages include information about self-advocacy. More information is available at: http://www.thebigtree.org/.

 

Central England People First, Northampton, United Kingdom, is a multi-branch organization composed of, and run by, people with intellectual disabilities. One of the primary aims of the organization is to ensure that people with intellectual disabilities are involved in the planning and development of the services that they receive. Other goals include raising public awareness and working against labeling. More information is available at: http://www.peoplefirst.org.uk/.

 

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European Platform of Self-Advocates (EPSA) is an international self-advocacy group affiliated with Inclusion Europe. The group aims to support the increased empowerment of self-advocates in Europe and to strengthen the European self-advocacy movement in general. To this end, the EPSA organizes conferences, publishes a monthly newsletter and informational brochures, and maintains a list of self-advocacy organizations in Europe. More information is available by clicking here

 

IndependenceFirst, Milwaukee, Wisconsin, USA is a non-profit organization directed by, and for the benefit of, persons with disabilities. IndependenceFirst has a vision for full inclusion of persons with disabilities in all aspects of the community and commits itself to this end. More information is available at: http://www.independencefirst.org/home/.

 

Kids as Self Advocates (KASA), Albuquerque, New Mexico, USA, is a self-advocacy organization for youth aged 13-21 living with disabilities and chronic health conditions. The KASA National Advisory Board is composed entirely of young adults with disabilities and chronic illnesses. The members of the advisory board recommend policy for the KASA project, lead KASA programming, and serve as resources regarding issues concerning young adults with disabilities and chronic illnesses. The program works to affect policy, educate the greater community, and strengthen the involvement of youth in related organizations. More information is available at: http://www.fvkasa.org/.

 

One For Us is an Easy-to-Read website designed for people with intellectual disabilities. It includes information on advocacy, health, housing, leisure, money, relationships, rights, and work. One For Us is supported by Speaking Up, a registered United Kingdom charity in Cambridge that provides advocacy services for people who experience learning difficulties, mental ill health and other disabilities. More information is available at: http://www.oneforus.com/.

 

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"Pentru Voi" Self-Advocates, Timisoara, Romania, is an active part of the self-advocates' movement in Romania. The group publishes "Pentru Voi" Magazine, the first Romanian magazine created by and for people with intellectual disabilities. Members of the group have participated in international conferences across Europe and have organized trainings on self-advocacy for young people. Most recently, "Pentru Voi" Self Advocates took part in the first national conference for self-advocates from September 4-5, 2006. More information is available at: http://www.pentruvoi.ro/servicii/servicii_autoreprezentare_en.htm or email pentruvoi@pentruvoi.ro.  For more information on the self-advocates' conference, please follow these links:

Conference Flyer
Conference Statement
Information on "Pentru Voi" Self Advocates and on the conference

 

People First, London, United Kingdom, is a network of organizations run by and for people with intellectual disabilities. People First works to raise awareness of issues of concern to people with intellectual disabilities, to campaign for the rights of people with intellectual disabilities, and to support self-advocacy groups. More information is available at: http://www.peoplefirstltd.com/.

 

People First New Zealand, like its counterparts in other countries, is run by and for people with intellectual disabilities. People First New Zealand covers the six regions of New Zealand, with a president for each region and branches all over the country. Their website includes a useful section on the internet with information about what it is and how to use it. It also provides links to other People First sites around the world. More information is available at: http://www.peoplefirst.org.nz/.

 

People First of Norfolk, Norfolk, United Kingdom, is an independent self-advocacy group for adults with intellectual disabilities. The group offers training and resources, collaborates with social service agencies, and actively works for positive social change and the empowerment of people with intellectual disabilities. More information is available at: http://www.peoplefirstofnorfolk.org/default.asp.

 

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Quality Action Group, Stirling, United Kingdom, works for the social inclusion of adults with intellectual disabilities. They run a drop-in and advice center, offer training and conferences, and talk with local governmental officials to work for socially inclusive public policy. The group is managed by people with intellectual disabilities. More information is available at: http://www.btinternet.com/%7Equalityaction/.

 

Self Advocacy Net, Vancouver, Canada, assists people with intellectual disabilities to speak up for themselves about their rights and to have their voices heard. More information is available at: http://www.selfadvocatenet.com/.


 

Self Advocacy Rocks! is the self-advocacy branch of the Far Northern Regional Center, Redding, California, USA. Self Advocacy Rocks! has a large focus on peer education. They offer trainings on abuse prevention, parenting sexuality, and acceptance. In addition to offering trainings to people with intellectual disabilities, they also work with service care providers and elementary schools. The group's accessible website is a fully talking web page. More information is available at:
http://www.farnorthernrc.org/selfadvocacyrocks/.

 

Self Advocacy Sydney, Inc., Sydney, Australia, is a self-advocacy organization which provides information and support on a fee-for-service basis for people in the Sydney metropolitan area. The organization is run by and for people with intellectual disabilities. Their mission is to support consumers in becoming self-advocates; to educate the greater Sydney community about self-advocacy and the rights of people with intellectual disabilities; and to develop connections with other similar groups. More information is available at: http://sasinc.com.au/.

 

Self Advocates Becoming Empowered (SABE) is a non-governmental organization based in the USA that aims to ensure that people with disabilities are treated as equals and that they are given equal choices, rights, and responsibilities. SABE seeks opportunities for people with disabilities to speak up to empower themselves, to make decisions, to learn from their mistakes, and to make new friends. More information is available at: http://www.sabeusa.org/.

 

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Self-Advocates' branch is a new branch of the National Down Syndrome Congress (USA) and the web section is still growing. Currently, the website offers information the annual Youth & Adult Conference held by and for self-advocates 15 years old and older as a part of the National Down Syndrome Congress convention. There is also information about how self advocates can participate in activities and become leaders in the National Down Syndrome Congress. More information is available at: http://www.ndsccenter.org/selfadvo/intro.php.

 

Speaking For Ourselves, Plymouth Meeting, Pennsylvania, USA, is an independent grassroots, self-help/self-advocacy organization run by people with intellectual disabilities. Speaking for Ourselves helps members run organizations, develop leadership skills through real-life experiences, learn to work together collectively, and increase self-sufficiency and independence. More information is available at: http://www.speakingup.org/advocacy/index.php

 

Speaking Up, a registered United Kingdom charity in Cambridge, supports the Active Voices initiatives. Active Voices is a range of energetic initiatives, such as Next Steps and the Cambridgeshire Parliament, that empower people with disabilities to find their voice and shape their own lives. More information is available at: http://www.speakingup.org/.   

 

TASH is an international association of people with disabilities, their family members, other advocates, and professionals who are fighting for a society in which inclusion of all people in all aspects of society is the norm. TASH is an organization of members concerned with human dignity, civil rights, education, and independence for all individuals with disabilities. More information is available at: http://www.tash.org/advocacy_members_take_action.html.

 

United Voice, Selangor, Malaysia, is also known as the Self-Advocacy Society of Persons with Learning Disabiliites, Selangor & Kuala Lumpur. The organization is run by and for people with intellectual disabilities in the target regions. Activities include training in advocacy and self-advocacy, awareness-raising, social gatherings, and participation in national and international dialogues, forums, and workshops. More information is available at: http://www.unitedvoice.com.my/.

 

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Highlights

1) Dumping Grounds For Forgotten People

An investigation by Bulgarian journalist Yana Buhrer Tavanier on the mental care institutions in Bulgaria, Romania and Serbia.   

Please visit the website dedicated to the investigation and view the new promotional video.


Judith Klein, director of the OSMHI (Open Society Mental Health Initiative) has written a foreword to the article, which appears in the newsletter of the European Coalition for Community Living, Issue No. 10, October 2009 and also on the investigation website.


2) Report of the Ad Hoc Expert Group on the Transition from Institutional to Community-based Care

A report on the Transition from Institutional to Community-based Care was handed over to Commissioner Vladimír ?pidla on September 23, 2009. The report was drafted by a group of independent experts convened by Commissioner Spidla in February 2009 to address the issues of institutional care reform in their complexity.  The report is also available in Bulgarian, Croatian, Hungarian, Romanian.

Films

Karin Dom - a training and resource centre for children with special needs and their families

This short film was made following a BBC production about a children's institution in Mogilino, Bulgaria. The film features MHI partner organization Karin Dom and highlights what community-based alternatives for children can be like in Bulgaria.

UN Disability Convention

The Convention on the Rights of Persons with Disabilities received its 20th ratification on April 3, 2008, triggering the entry into force of the Convention and its Optional Protocol on May 3, 2008. This marks a major milestone in the effort to promote, protect and ensure the full and equal enjoyment of all human rights and fundamental freedoms of persons with disabilities, and to promote respect for their inherent dignity.

Information on the convention process:
Convention in Easy to Read
View the list of signatories
Countries that have ratified the Convention
ICRPD Ratification Toolkit
Convention and Inclusive Education
View more information

 

News reports on the Convention:
Agreement on New UN Convention
Urging Implementation
Archive Webcast: Convention Signing 
Record Number of Countries Sign
Secretary-General Ban Hails Entry Into Force Of Treaty On Disability Rights
More news reports

Publications:
UN Handbook for Parliamentarians on the Convention on the Rights of Persons with Disabilities and its Optional Protocol
First Implementation Manual For The United Nations Convention On The Rights Of Persons With Disabilities (Addressed Specifically To Users And Survivors Of Psychiatry)


Ratify Now (The campaign to support global grassroots efforts to ratify the Convention on the Rights of Persons with Disabilities).

Films about Inclusion

Foster Care for Children with Disabilities: English ** Russian

I Want to Work and I Can Work!

Living Proof: The right to live in the community

Reality - film on personal assistance

Being an Unperson. A short film about the experience of dehumanization within the care system.

In My Language. A short film about autism and nonverbal communication.

A Way of Describing Autism. A short film by Dave Spicer and Amanda Baggs.

Equalise It!

A Manifesto for Disability Equality in Development Cooperation

The international committee of UK Disabled People's Council (formerly BCODP) has written this manifesto in the light of the signing of the UN Convention on the Human Rights of Persons with Disabilities. 

To read the campaign launch letter, please click here.

Organisations who wish to sign up to the Manifesto are asked to contact Bill Albert or Mark Harrison so that their name and logo can be added to the list of signatories.