The Open Society Mental Health Initiative

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Best Practices In Supported Decision-Making

 

Cloverleaf Advocacy, Dewsbury, United Kingdom, believes that people with any form of disability or mental health problem are equal members of society, and that everybody has the right: to plan their own life, to be listened to, to be taken seriously, and to be respected. Cloverleaf Advocacy challenges discrimination and advocates for full participation and user involvement services so that people with disabilities can make decisions about their own care, make an impact on services which they use, and influence other decisions which affect their own lives. More information is available at: http://www.cloverleaf-advocacy.co.uk/.

 

Community Living Ontario, Ontario, Canada, has as its goal that all persons live in a state of dignity, share in all elements of living in the community, and have the opportunity to participate in the community effectively. The web page offers detailed information on the main principles of supported decision-making services. More information is available at: http://www.communitylivingontario.ca/page/individualization.aspx.

 

The Down´s Syndrome Association (DAS), Teddington, United Kingdom, focuses on all aspects of living successfully with Down's syndrome. It provides information and support for people with Down's syndrome, their families and caregivers, and serves as a resource for interested professionals. The organization champions the rights of people with Down's syndrome and is a member of the Making Decisions Alliance.  More information is available at: http://www.downs-syndrome.org.uk/.

 

Manitoba Family Services and Housing, Manitoba, Canada, provides information on supported decision-making in Manitoba under The Vulnerable Persons Living with a Mental Disability Act. More information is available at: http://www.gov.mb.ca/fs/pwd/vpact_decision.html#what.

 

MacIntyre, Central Milton Keynes, Buckinghamshire, United Kingdom, is a charity providing lifelong education, care, and support for children and adults with learning disabilities. Its person-centered planning (PCP) is an empowering approach to help people who want to make changes in their life, achieve their goals, plan for the future, and organize the systems and support they need to live "a life that makes sense to them." More information is available at: http://www.macintyrecharity.org/.

 

The Personal Advocacy Trust, Wellington, New Zealand, was formed by parents concerned about the welfare of their intellectually disabled child when the parents pass away. In exchange for a fee, the Personal Advocacy Trust provides a trained, supervised advocate for the rest of the child's life after the parents are unable to care for him or her.  Advocates visit regularly and speak up, with and for the person with a disability. Advocates act when the individual's rights are not being respected. They also monitor the support provided to ensure that it is appropriate. They often provide supported decision-making for financial matters.  Advocates speak for the children in a wide range of areas including ensuring that they have appropriate accommodation, their health needs are being met and that they are not being abused.. More information is available at:  http://www.weka.net.nz/DSS/dss.nsf/adb582e2c71e0115cc256e55000f7da3/2308923c59bb8848cc256a4b007201c9?OpenDocument.

 

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Highlights

1) Dumping Grounds For Forgotten People

An investigation by Bulgarian journalist Yana Buhrer Tavanier on the mental care institutions in Bulgaria, Romania and Serbia.   

Please visit the website dedicated to the investigation and view the new promotional video.


Judith Klein, director of the OSMHI (Open Society Mental Health Initiative) has written a foreword to the article, which appears in the newsletter of the European Coalition for Community Living, Issue No. 10, October 2009 and also on the investigation website.


2) Report of the Ad Hoc Expert Group on the Transition from Institutional to Community-based Care

A report on the Transition from Institutional to Community-based Care was handed over to Commissioner Vladimír ?pidla on September 23, 2009. The report was drafted by a group of independent experts convened by Commissioner Spidla in February 2009 to address the issues of institutional care reform in their complexity.  The report is also available in Bulgarian, Croatian, Hungarian, Romanian.

Films

Karin Dom - a training and resource centre for children with special needs and their families

This short film was made following a BBC production about a children's institution in Mogilino, Bulgaria. The film features MHI partner organization Karin Dom and highlights what community-based alternatives for children can be like in Bulgaria.

UN Disability Convention

The Convention on the Rights of Persons with Disabilities received its 20th ratification on April 3, 2008, triggering the entry into force of the Convention and its Optional Protocol on May 3, 2008. This marks a major milestone in the effort to promote, protect and ensure the full and equal enjoyment of all human rights and fundamental freedoms of persons with disabilities, and to promote respect for their inherent dignity.

Information on the convention process:
Convention in Easy to Read
View the list of signatories
Countries that have ratified the Convention
ICRPD Ratification Toolkit
Convention and Inclusive Education
View more information

 

News reports on the Convention:
Agreement on New UN Convention
Urging Implementation
Archive Webcast: Convention Signing 
Record Number of Countries Sign
Secretary-General Ban Hails Entry Into Force Of Treaty On Disability Rights
More news reports

Publications:
UN Handbook for Parliamentarians on the Convention on the Rights of Persons with Disabilities and its Optional Protocol
First Implementation Manual For The United Nations Convention On The Rights Of Persons With Disabilities (Addressed Specifically To Users And Survivors Of Psychiatry)


Ratify Now (The campaign to support global grassroots efforts to ratify the Convention on the Rights of Persons with Disabilities).

Films about Inclusion

Foster Care for Children with Disabilities: English ** Russian

I Want to Work and I Can Work!

Living Proof: The right to live in the community

Reality - film on personal assistance

Being an Unperson. A short film about the experience of dehumanization within the care system.

In My Language. A short film about autism and nonverbal communication.

A Way of Describing Autism. A short film by Dave Spicer and Amanda Baggs.

Equalise It!

A Manifesto for Disability Equality in Development Cooperation

The international committee of UK Disabled People's Council (formerly BCODP) has written this manifesto in the light of the signing of the UN Convention on the Human Rights of Persons with Disabilities. 

To read the campaign launch letter, please click here.

Organisations who wish to sign up to the Manifesto are asked to contact Bill Albert or Mark Harrison so that their name and logo can be added to the list of signatories.