The Open Society Mental Health Initiative

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Autism Spectrum - Best Practices

 

Autism Collaboration brings together autism advocacy organizations in the USA and internationally to inform, solicit, review, and fund autism research initiatives following the guiding principle of "helping the most kids the most quickly". Members of Autism Collaboration include: TACA, Unlocking Autism, Treating Autism, Generation Rescue, SafeMinds, Autism Research Institute, Autism One, Autism Society of America, The Autism Trust, Mindd Foundation, National Autism Association, Schafer Autism Report, and EmergenzAutismo.org. More information is available from: http://www.autism.org/.

 

Autism Does Not Disappear At 18! is a project of Pentru Voi Foundation in Timisoara, Romania. The project aims to develop specialized support services for persons diagnosed with autism in their childhood.  It also aims to raise awareness of persons with autism among General Practitioners (GP's), psychiatrists, local authorities, and local communities. Within the project is a campaign to promote the social inclusion of adults with autism; training sessions for GP's and specialists working with adults with autism; an advocacy group on social inclusion of adults diagnosed with autism in their childhood and two support groups for 15 adults with autism and their families. The project is financially supported by the European Union and the Romanian Government through PHARE 2006 - Support for the development of the mental health community-based services and deinstitutionalization of persons with mental illness.  More information is available at: http://www.pentruvoi.ro/content/content/news/38/140/37/.

 

Autistic Spectrum Disorders: Good Practice Guidance, produced in 2002 by the United Kingdom's Department for Education and Skills, aims to raise awareness and standards of support for children with ASDs. It is organized in two parts. Part I (Guidance on Autistic Spectrum Disorders) offers an introduction on the nature of ASDs and the principles of good service provision for children with ASDs. Part II (Pointers to Good Practice) helps service providers to develop provision for children with ASDs based on the collective experience of practitioners.

 

Ballastexistenz is a blog established and maintained by a non-verbal woman with physical disability as well as autism, who has lived in institutions and whose subsistence and services are funded by the state. The name "ballast" was a dehumanizing cliché used in Nazi Germany to refer to people whom the state considered a burden on society and a waste of space and money. The blogger has used the term to contrast it with her real life. This blog shares ideas about human rights, autistic liberation, and disability rights. More information is available at: http://ballastexistenz.autistics.org/

 

Center za avtizem, Ljubljana, Slovenia, is an association of special education teachers, psychologists, therapists, and other professionals, experts, and advocates, working to promote  inclusion of persons with autism. It is a member organization of Autism Europe. More information (in Slovenian) is available at: http://www.avtizem.org/.

 

 

The Early Bird Programme of the National Autistic Society, Barnsley, South Yorkshire, United Kingdom, combines group center-based training sessions (for parents of children with ASD) with individual home visits to help parents apply what they learn and work directly with their children. More information is available at: http://www.nas.org.uk/earlybird.

 

 

Ritzy Film Club for Adults with Learning Disabilities, London, United Kingdom, is a film club at the Ritzy Cinema, established especially for adults with learning difficulties, and their friends or care-givers. The Lambeth Autism group[Link Missing] d developed the idea of autism-friendly screenings, when the soundtrack is turned down, and low lights are left in the auditorium. More information is available at: http://www.picturehouses.co.uk/site/cinemas/ritzy/community.htm.

 

Highlights

1) Dumping Grounds For Forgotten People

An investigation by Bulgarian journalist Yana Buhrer Tavanier on the mental care institutions in Bulgaria, Romania and Serbia.   

Please visit the website dedicated to the investigation and view the new promotional video.


Judith Klein, director of the OSMHI (Open Society Mental Health Initiative) has written a foreword to the article, which appears in the newsletter of the European Coalition for Community Living, Issue No. 10, October 2009 and also on the investigation website.


2) Report of the Ad Hoc Expert Group on the Transition from Institutional to Community-based Care

A report on the Transition from Institutional to Community-based Care was handed over to Commissioner Vladimír ?pidla on September 23, 2009. The report was drafted by a group of independent experts convened by Commissioner Spidla in February 2009 to address the issues of institutional care reform in their complexity.  The report is also available in Bulgarian, Croatian, Hungarian, Romanian.

Films

Karin Dom - a training and resource centre for children with special needs and their families

This short film was made following a BBC production about a children's institution in Mogilino, Bulgaria. The film features MHI partner organization Karin Dom and highlights what community-based alternatives for children can be like in Bulgaria.

UN Disability Convention

The Convention on the Rights of Persons with Disabilities received its 20th ratification on April 3, 2008, triggering the entry into force of the Convention and its Optional Protocol on May 3, 2008. This marks a major milestone in the effort to promote, protect and ensure the full and equal enjoyment of all human rights and fundamental freedoms of persons with disabilities, and to promote respect for their inherent dignity.

Information on the convention process:
Convention in Easy to Read
View the list of signatories
Countries that have ratified the Convention
ICRPD Ratification Toolkit
Convention and Inclusive Education
View more information

 

News reports on the Convention:
Agreement on New UN Convention
Urging Implementation
Archive Webcast: Convention Signing 
Record Number of Countries Sign
Secretary-General Ban Hails Entry Into Force Of Treaty On Disability Rights
More news reports

Publications:
UN Handbook for Parliamentarians on the Convention on the Rights of Persons with Disabilities and its Optional Protocol
First Implementation Manual For The United Nations Convention On The Rights Of Persons With Disabilities (Addressed Specifically To Users And Survivors Of Psychiatry)


Ratify Now (The campaign to support global grassroots efforts to ratify the Convention on the Rights of Persons with Disabilities).

Films about Inclusion

Foster Care for Children with Disabilities: English ** Russian

I Want to Work and I Can Work!

Living Proof: The right to live in the community

Reality - film on personal assistance

Being an Unperson. A short film about the experience of dehumanization within the care system.

In My Language. A short film about autism and nonverbal communication.

A Way of Describing Autism. A short film by Dave Spicer and Amanda Baggs.

Equalise It!

A Manifesto for Disability Equality in Development Cooperation

The international committee of UK Disabled People's Council (formerly BCODP) has written this manifesto in the light of the signing of the UN Convention on the Human Rights of Persons with Disabilities. 

To read the campaign launch letter, please click here.

Organisations who wish to sign up to the Manifesto are asked to contact Bill Albert or Mark Harrison so that their name and logo can be added to the list of signatories.