The Open Society Mental Health Initiative

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Self Advocacy Is

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Self Advocacy

 

 Self Advocacy in Easy to Read.

 

All people, regardless of ability, have the right to speak for themselves, to voice their opinions, and to make decisions that affect the course of their lives. The concept of self advocacy rests upon this right. Among people with an intellectual disability, self advocacy means people speaking out for themselves, either directly or with supports. Regardless of the severity of an intellectual disability, it is possible to listen to people as they communicate their needs and desires.

 

Self advocacy works at both the individual and group levels. At the individual level, self advocacy assumes that each person has the right to stand up for herself or himself and that people can be empowered to do so. At the group level, self advocacy is part of a larger civil rights movement that aims to represent people who, as a group, have historically and systematically been discriminated against and barred from full inclusion in society. While self advocacy is part of the larger disability rights movement in many parts of the world, it is primarily focused on issues of concern for people with intellectual disabilities.

 

As an idea and a movement, self advocacy began in the 1960s-1970s. People with intellectual disabilities in Europe and the United States began organizing and speaking out--for their rights, and against the discrimination that they experienced. They began to publicly voice their concerns. Several permanent self advocacy organizations were formed, among them People First and Self Advocates Becoming Empowered. The name People First, in particular, has reached around the globe as numerous self-advocacy groups have shared and adopted the title.

 

Today, self advocacy groups and individual self advocates work world-wide speaking up for their rights. Some of the actions undertaken by self advocates include offering opportunities for empowerment to people with intellectual disabilities; ensuring that people with intellectual disabilities are involved in the process of making decisions about their own lives; developing and hosting conferences; building self advocacy skills; and raising public awareness about issues of concern to people with intellectual disabilities.

 

In this section you will find publications and reports and other useful links related to self advocacy.

Highlights

1) Dumping Grounds For Forgotten People

An investigation by Bulgarian journalist Yana Buhrer Tavanier on the mental care institutions in Bulgaria, Romania and Serbia.   

Please visit the website dedicated to the investigation and view the new promotional video.


Judith Klein, director of the OSMHI (Open Society Mental Health Initiative) has written a foreword to the article, which appears in the newsletter of the European Coalition for Community Living, Issue No. 10, October 2009 and also on the investigation website.


2) Report of the Ad Hoc Expert Group on the Transition from Institutional to Community-based Care

A report on the Transition from Institutional to Community-based Care was handed over to Commissioner Vladimír ?pidla on September 23, 2009. The report was drafted by a group of independent experts convened by Commissioner Spidla in February 2009 to address the issues of institutional care reform in their complexity.  The report is also available in Bulgarian, Croatian, Hungarian, Romanian.

Films

Karin Dom - a training and resource centre for children with special needs and their families

This short film was made following a BBC production about a children's institution in Mogilino, Bulgaria. The film features MHI partner organization Karin Dom and highlights what community-based alternatives for children can be like in Bulgaria.

UN Disability Convention

The Convention on the Rights of Persons with Disabilities received its 20th ratification on April 3, 2008, triggering the entry into force of the Convention and its Optional Protocol on May 3, 2008. This marks a major milestone in the effort to promote, protect and ensure the full and equal enjoyment of all human rights and fundamental freedoms of persons with disabilities, and to promote respect for their inherent dignity.

Information on the convention process:
Convention in Easy to Read
View the list of signatories
Countries that have ratified the Convention
ICRPD Ratification Toolkit
Convention and Inclusive Education
View more information

 

News reports on the Convention:
Agreement on New UN Convention
Urging Implementation
Archive Webcast: Convention Signing 
Record Number of Countries Sign
Secretary-General Ban Hails Entry Into Force Of Treaty On Disability Rights
More news reports

Publications:
UN Handbook for Parliamentarians on the Convention on the Rights of Persons with Disabilities and its Optional Protocol
First Implementation Manual For The United Nations Convention On The Rights Of Persons With Disabilities (Addressed Specifically To Users And Survivors Of Psychiatry)


Ratify Now (The campaign to support global grassroots efforts to ratify the Convention on the Rights of Persons with Disabilities).

Films about Inclusion

Foster Care for Children with Disabilities: English ** Russian

I Want to Work and I Can Work!

Living Proof: The right to live in the community

Reality - film on personal assistance

Being an Unperson. A short film about the experience of dehumanization within the care system.

In My Language. A short film about autism and nonverbal communication.

A Way of Describing Autism. A short film by Dave Spicer and Amanda Baggs.

Equalise It!

A Manifesto for Disability Equality in Development Cooperation

The international committee of UK Disabled People's Council (formerly BCODP) has written this manifesto in the light of the signing of the UN Convention on the Human Rights of Persons with Disabilities. 

To read the campaign launch letter, please click here.

Organisations who wish to sign up to the Manifesto are asked to contact Bill Albert or Mark Harrison so that their name and logo can be added to the list of signatories.